本研究採質性取向之敘說研究法，透過一位成年早期罹患末期腎病且接受腹膜透析病患之生命敘說，瞭解其生命經驗，省思現存疾病對個案的生活衝擊，並從中探思生命意義。本研究目的如下：1.回顧個案過往生命歷程理解其生命經驗。2.探析現存疾病對個案的生活衝擊。3.從個案的生命敘說歷程省思生命的意義。 結論、省思與建議：研究對象在第二胎懷孕後期，三十歲開始接受血液透析，生產後轉為腹膜透析，面對疾病的羈絆同時哺育幼兒與家庭照護責任的重擔迎面而來，隨著敘說過程逐漸開啟內心世界，在逆境中省思自我面對生命的態度，領悟出過去生命的動向，無懼罹病陰霾找到滋養生命的力量，轉而為自我生命定位，展現出獨特的存在價值，超越疾病困境。最後以他人的生命經歷作為借鏡，尋得正能量，轉而幫助他人，為自己開啟另一趟生命旅程與尋獲向前行之力量。 本研究依據結論提出建議並期望透過研究對象的生命經驗展現，提供相同疾病的個案或臨床實務工作者做為參考。 This study is a narrative study employing qualitative research, examining an early adulthood patient who suffered from end-stage renal disease and received peritoneal dialysis. We aimed to understand her life experiences and this particular journey of life, which brought various meanings to her life, reconstructing the direction of her future life. The purpose of this study is as follows: 1. Reflect on the past life process and understand its life experience. 2. Analysis the impact of the existing disease. 3. Thinking about the meaning of life from the life narrative process. Conclusions, reflections and suggestions of case: A thirty year-old women began hemodialysis in the late stage of her second pregnancy. She received peritoneal dialysis in the postpartum period. Facing the limitations of disease, the burden of child care and family care responsibilities, she gradually opened her inner world, took a self-conscious attitude towards life, and through the adversity gained better comprehension of the movement of life in the past. She had no fear of disease haze and found the power to nourish life, then turning to her life orientation and showing a unique presence value beyond the plight of the disease. She found positive energy to help others, opening another journey of life for herself, and finding the power to move forward with her life experience. This study makes some suggestions based on conclusions and expects to show the life experience of the object of study, providing a guide to clinical workers and patients with the same disease.
