這是我的乳房：一位女性乳癌患者的自我敘說

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题名:	這是我的乳房：一位女性乳癌患者的自我敘說
其它题名:	It’s My Breast: A Self-Narrative of a Female Breast Cancer Patient
作者:	曾靜芬
贡献者:	吳麗玉
关键词:	乳房;乳癌;敘說;身體意象;醫病關係;女性主義;Body Image;Breast;Breast Cancer;Doctor-patient relationship;Feminism;Narrative
日期:	2015
上传时间:	2015-10-30T07:09:09Z
出版者:	經國管理暨健康學院;健康產業管理研究所
摘要:	這是一位女性乳癌患者，敘說生命故事，思考自我存在以及乳房困境的歷程。乳癌的「癌」讓我不得不思考與面對自己最深的恐懼，死亡，但也因為對死亡的思考，讓我重新定義自己存在的意義與價值。乳癌的「乳」讓我有更多的思考，面對逐年增加的乳癌發生率，意謂著疾病與死亡，是這個時代乳房的一種真實，也是一種困境，但也是女性重新審視自己的身體與乳房的機會。在閱讀乳癌文獻的過程中，看見乳癌患者以妖怪、不像女人、殘廢來看待失去乳房的自己，讓我覺得很心疼，雖然我真的可以接受失去乳房的事實，也喜歡一個乳房的自己，於是在「妖怪自己」與「喜歡一個乳房的自己」之間，我思考乳癌患者如何從束縳中獲得自由的可能方法。本研究在探討：1. 乳房的自主權：我們擁有自己乳房，當我們真的認為「這是我們的乳房」，乳房的意義與價值就由我們自己來定義，就算是失去乳房，其意義與價值也應該由我們自己來詮釋。2. 乳房與自我認同：乳癌→自我實現（意志、勇氣、毅力）→新的認同關係→認同失去乳房的自己→喜歡一個乳房的自己，這就是我與乳房的新關係。3. 乳癌術後影響身體意象的因素：對於女性身體自主意識的覺醒，主動學習喜歡一個乳房的自己，乃乳癌術後影響身體意象的重要因素，值得國內相關研究的重視與討論。本研究同時也關心：1. 醫病關係中的身體自主權：癌症病患可以傾聽自己心理與身體的聲音，並相信自己對癌症的閱讀與了解是能幫助自己的疾病，相信自己是可以與醫生討論醫療決策的，相信自己是可以選擇適合治療方式的，相信我們擁有自己的身體。2. 疾病的污名化：將個性上或是生活上的不完美視為罹癌的原因，就是一種疾病的污名化，不完美是我們每個人生活在個世界的真實，但不必然是致癌原因。乳癌歷程，是一段自我實現的歷程，我的世界因我存在的意義改變而改變，我存在的價值因生命的自我實現而更有價值。感謝乳癌，讓我生命轉個彎，感謝乳癌，讓我換個角度看生命，看見不同的人生風景。 This is a narrative of a female breast cancer patient, her life story, thoughts on existence, and facing the difficulties on her breasts. Thoughts of my greatest fear—death—and how I must face it haunts me at the mention of breast cancer. However, it is also through my thoughts of death that I am able to redefine the value as well as the meaning of my existence. Breast cancer is a reality and dilemma for people this era; nevertheless it is an opportunity for females to reflect on their breasts and bodies. When going through breast cancer related literature, my heart ache from seeing female breast cancer patients debase themselves; many labeled themselves as monsters, unwomanly, and/or crippled due to losing their breasts. I felt how they felt before but I have come to accept losing one of my breasts, and I grew to loving myself as a single-breasted woman. Thus, between seeing myself as a monster versus a self-loving single-breasted woman, I began searching ways to free breast cancer patients from the chains of their labels and distress. In this study, we investigate: 1. Autonomy over our breasts: We have our own breasts. When we think “those are our breasts,” the meaning and value of them will be ours to decide; even if we lose our breasts, their meaning and value is still decided by us. 2. Breasts and self-acceptance: Breast cancer  self-realization (determination, bravery, and perseverance)  new self-acceptance  accept losing a breast  love the single breasted self, this is the new relationship between my breast and I. 3. The factors that affect body image after breast cancer surgery: The rising of female independent awareness and learning to proactively love her single-breasted self are crucial factors in affecting body image after breast cancer surgery and should be the focus of related research within the nation. We also examined: 1. Physical autonomy and doctor-patient relationship: A cancer patient can listen to the body and soul, and come to believe that the literature on and understanding of cancer will better help her treat it; to believe that she will work out the best strategy to fight cancer with her doctor; to believe that she is the one to choose what treatment is suitable; to believe that she owns her body. 2. Illness stigmatization: Viewing the imperfections of a lifestyle or personality as the cause of cancer is a stigma many have. Nothing in life is perfect, that is the reality, but these imperfections are not what cause cancer. The journey with breast cancer is one to self-realization. I have changed my world through changing my value of life; my value of existence became more valuable due to my self-realization towards life. Thank you, breast cancer, for allowing my life to take a turn. Thank you, breast cancer, for providing me with another perspective on life and providing me with different sceneries.
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